PinnedMedicaid or Medication: Having To ChooseIf you had to choose between a medication that allowed you to work and thrive or a life of poverty without it, what would you choose?Apr 30, 2024Apr 30, 2024
PinnedThis Isn’t About Saving Lives, It’s About Money: Pain Patients & The ‘Opioid Crisis’If this were about saving human lives, tobacco and alcohol would be outlawed. According to the WHO, “Almost six million people die from…Apr 18, 20232Apr 18, 20232
PinnedA Pain Patient and Advocate’s Take on Chronic Pain AnonymousAs pain patients, we face things that challenge not only our abilities to function in a day-to-day fashion, but also our abilities to…Aug 5, 2022Aug 5, 2022
An Open Letter To Parents Giving Their Children Ivermectin To Treat AutismDear parents of autistic children..Mar 28, 2023Mar 28, 2023
Fearing My Providers After Medical NeglectI have EDS (Ehlers-Danlos Syndrome), hypermobile type. I was diagnosed with it in 2017 after having been wrongfully diagnosed with…Mar 22, 2020Mar 22, 2020
Running Out of My Pain MedicationMy primary CNP retired recently. She recommended a co-worker to me. I listened to her and scheduled with him. I know his other two…Jul 2, 2019Jul 2, 2019
Generalizing Ehlers-Danlos SyndromeI often wonder when it became acceptable to generalize chronic illness patients. It’s been something kicking around in my head for years…Jun 20, 2019Jun 20, 2019